Scatter “kindness” wherever your go…
Last evening while getting Mom ready for bed, we reflected a bit on the day. One of my observations was that regardless of how good or bad the day has been, Mom always has a smile and a twinkle in her eye as we tuck her in for the night. And for the most part is cheerful throughout her awake hours! We are truly blessed in so many ways.
The good days certainly outnumber the bad – likely 50 to 1. That’s pretty good odds when I hear from others who are providing care.
We’ve learned to see what she loves, holds dear and then try to emulate that in ways she can feel the love too. She’s sprinkled a lot of love and kindness in her 85 years — Mom has always been known for being kind, wise and gentle.
What are you looking for today?
Don’t be afraid to stop and think about this… I totally understand that some days it’s more difficult than others.
We are blessed with a pretty wonderful familial support system. Not all caregivers and “patients” are and their worlds come crashing down when they can’t reach out to others.
Recently, we took Mom in for an appointment with her primary care physician. I guess I wasn’t expecting nor was I fully prepared for the discussion he wanted to have regarding goals and other possible outcomes for the year. While open to the process and discussion, I know I can’t make those suggested changes without the help of those in our support system. He also suggested a few things that might make our lives as caregivers easier, but some that may not.
I spent last evening thinking about the changes… and the possible silver linings that might be there… I’m still making my list, so yes, there are many potential silver linings. I’m game to have an open discussion and hope you, the reader are open to changes and silver linings too. Let’s have a #bestdayever!
See the possibilities the day has to offer.
It’s been an interesting couple of weeks…. I can’t say every day has ended on a good note, but the majority of them have. Laughter and smiles are often still a norm during her awake times.
One of the questions that popped up in the last week or so for us is:
When do you as caregiver become the full time decision maker and take away one more instance of independent decision making?
I hope we can continue to allow her to make some of the basic decisions regarding her life for a while longer. Creating space for her to feel some form of independence and still being a whole person and still feel and experience big feelings and know that it’s okay and is a healthy thing.
See the possibilities….
See the good — make it a #bestday
It’s been an interesting week. We’ve experienced some highs and lows. We’ve watched as her eyes fill with joyful tears as she hears of family news and experiences the joy of the successes we’ve shared of children, grandchildren and great-grandchildren. Every one a milestone. Photos, videos, text messages and calls and impromptu visits. #bestday
I have watched her face light up, her smile grow broader and then dim as the memory fades all too quickly. However, a day never goes by that there isn’t a thank you or I love you exchanged with everyone she meets or sees as they visit our home.
I can only hope that Alzheimer’s won’t steal that away for a bit longer… I cherish hearing her voice. Seeing her eyes light up and her beautiful smile. These are the good moments… to be treasured forever.
Make something beautiful happen today…
Despite the cold, the wet or the cloudy, the sun is shining somewhere. Find the “shine” in your day and make the most of it.
I think we’ve stumbled on the right “formula” and we are “in sync” again. It’s just taking some trial and error on the caregiver’s part (ME) to find how things mesh with Mom again as she continues to move forward on her own journey. deeper and deeper on the pathway of Alzheimer’s. We are so grateful that the decline is gradual, but that slope is moving into realms of darker days than I think we’re ready to accept.
We are grateful for the beauty we’ve been able to be a part of thus far and hope the beauty of the journey will continue to be one scattered with bits of sunshine every day.
This isn’t always the easiest thing… during the wee hours of the morning and you know the alarm is going to sound sooner than you’d like…
Last night’s wander ultimately ended back in the bedroom and to the edge of her bed. I can only imagine her angst in not being able to figure out how to get back into bed. I watched the monitor for a very short period of time hoping she’d figure out what she needed to do… but it didn’t happen.
She was grateful to see me as I opened her door a little bit wider — happy to hear that the problem she faced was fixable and soon she was tucked safely back in her bed again and within a very short time was sleeping peacefully again, even as I held her hand for a moment longer. .
I love you Mom.
Find the good. Be the good.
It’s almost like getting your second wind — you know that burst of energy at the end of a long day…the desire to accomplish more or better yet, BE MORE.
Today’s a good day to find your “second wind,” and be present.