Month: August 2018

treasures

it never ceases to amaze me when we “catch” that moment of lucidity, share a laugh, cry a little or hug, or stumble upon an idea that changes the course of things….  (https://greatitudes.com/2018/06/24/a-month-of-changes/)

This week we had a routine visit with Mom’s primary care physician.  He seemed genuinely thrilled with Mom’s current state of health and was even more impressed to notice that her hair was growing back in  (Yes, that’s a big deal!) and that there were no open wounds from “picking.”  We talked about the change in medication of one of her prescriptions and how that change in dosage was making a difference in the intensity of the headaches but more importantly the “deep itching” on her scalp and sometimes other places on her body.

It’s taken a couple of months to get to this point of 20 minutes or so of  “not-picking”, but it’s so been worth it.  We are grateful to the medical professionals who were willing to listen and let us advocate and try something a little different to see if it made a difference for Mom and hopefully, it might make a difference for another patient in their care experiencing the same issues.

Today, we’ll not take for granted one single moment.  We’ll treasure each one and the joy they can bring.

Karen Salmonsohan

 

July has come and gone

Oh My!  Where has time gone?  I’ve thought about sharing a few updates over the course of the last 6 weeks, but continue to get waylaid by life and time spent with Mom.

If you read my last post, you know that the last round of PT visits didn’t quite go as planned.  The PTA wasn’t the best fit for Mom and it was difficult to get Mom to do the exercises when the PTA wasn’t here.  We did learn a few things with that experience… and have resolved that Mom’s well being doesn’t always mean bringing in an army of reinforcements.

We still experience daily, weekly, monthly highs and lows, but overall, the past month wasn’t as much of a low as the one before.  Change is hard and upon reflection, probably as difficult for the caregiver to handle/accept as it is for everyone else.

About 2 weeks ago, the finishing touches were added to the wheelchair ramp.  It makes it so much easier to get Mom in and out and spend a little bit of time outside every few days — we haven’t been able to do that recently since the air quality has been so bad due to the recent wildfires in the area.  But when we have been outside, it’s definitely worth the smiles and seeing her eyes light up as she takes in the sights and sounds.


A side note:  Self-care for the caregiver is again at the top of my list.  I hope you do the same.  Despite the fact that I can’t control the number of hours of sleep I get at night right now, I can and do make time to take a walk, observe nature, get a little bit of sunshine, read, study, take a class, shop, go to lunch, and make time to do a few other things I enjoy.

It’s been a blessing at so many levels. We can do so much together with the right support.

Remember, Be Kind to YOURSELF!  No one else can be the kind of caregiver you were meant to be.