Month: March 2024

Keep your heart open to the “extras.”

CAREGIVER NOTE:

He hasn’t slept all night for the last couple of evenings, however, he has been able to handle whatever he’s been dreaming about without wandering around the house or getting upset about things. His eyesight is bothering him — but sadly there’s not much that can be done to correct it at this point. That makes him sad and contributes to his longing to do things he feels he can’t do any more. We’ve tried some adaptive tools, but he doesn’t like them or want to use them.

On the brighter side of things he’s been throwing out one line zingers the past few days with gusto! Lots of smiles, chuckles and even a few belly laughs. He was sharing stories about his brother again last night and while a few elements of the story had changed, most of the details were as sharp as ever.

You’ve got this! 

CAREGIVER NOTE:

the dreams are back after a 2 night lull…. At least he wasn’t upset or worried about things as much as he had been on previous nights of having the dream. I caught him crawling out of his room last night. Not sure why he took to crawling but a part of that might have been that his nightlight had burned out and it was a bit darker than the norm. We took another stroll through the main level of the house so he could once again familiarize himself with the layout and recognize things — which he did readily. He decided he’d try to go back to bed and get some sleep after the nightlight was replaced. He’s been sleeping since 2am and for that I’m grateful. I’m really hoping he’ll sleep for a couple more hours before getting up for the day as I’m doubtful we’ll be able to spend any time outside due to inclimate weather. Just hoping we don’t lost power for any length of time, as it will be hard to keep him occupied otherwise.