CAREGIVER NOTE:
He’s giving us a run for our money. He’s officially on hospice and isn’t willing to take his meds — spit them out, has been awake for a good portion of the night which means I have officially been awake for over 24 hours now. Not how I had hoped to spend my first night – nor did T. He has to help reposition and roll when when needed… and it was needed a lot last night. He’s taken off his brief again. His feet are dangling off the bed, again. And he won’t keep the oxygen on either. Not sure what the nurse will say this morning, but I hope she’s got an idea other than to keep trying…

It would be nice to get into a routine of sorts — but he might have other plans as he tries to assert himself and tries to do things he can’t.

POSITIVES:
The hospice contacts have been great
Family has given us a little bit of wiggle room to get settled.